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The importance of health care data and good data practices continues to grow as the Covid-19 pandemic drives further digitalisation and creates new data streams. This online event explores the importance of patients trusting that their health and care data will be safely and responsibly used by the NHS. Now is the time to come together and look at how we can modernise protocols and ensure trust is built with the public.

This event is the first in a series exploring how we put trust, transparency and fair value at the centre of digital health and care. Our expert panel will discuss what public institutions, industry and decision-makers that hold, control and use our most personal data are doing to help to maintain and improve trust in England while simultaneously modernising best practice.

Join us to take part in the debate about:

  • trust and transparency – where are we now?
  • the benefits of trust and why it is important
  • the role of leaders in creating trust and a culture of data transparency
  • the benefit of sharing data and how it can be done safely
  • the unknowns and pitfalls, including: who might get left behind without trust, and is trust dependent upon socio-economic background or ethnicity?
  • local vs central – what happens at each level to ensure trust?

Speakers

Siva Anandaciva

Siva Anandaciva

Chief Analyst, Policy, The King’s Fund (chair)

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Siva is chief analyst in the policy team, leading on projects covering NHS funding, finances, productivity and performance.

Before joining the Fund in 2017, Siva was head of analysis at NHS Providers – the membership body for NHS trusts and foundation trusts – where he led a team focused on NHS finances, workforce and informatics. Previously, he was an analyst in the Department of Health working on medicines policy and urgent and emergency care.

Siva is a member of the Office of Health Economics policy committee and chairs the National Payment Strategy Advisory Group for NHS England and NHS Improvement.

 

Jennifer Pougnet

Jennifer Pougnet

Data Policy Strategy Leader, Personalised Care, Roche

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Jennifer has worked in large-scale public health systems in Canada implementing Electronic Medical Records as well as developing and implementing both operational and legislative health policy. She has been with Roche for the last 5 years working on innovative funding pathways for companion diagnostics and Next Generation Sequencing and now works as the Global Data Policy Strategy Lead for Personalised Healthcare in Switzerland

 

Debbie Keatley

Debbie Keatley

Member, use MY data

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Debbie Keatley has experienced cancer as a patient and carer, as well as other long-term conditions, and is passionate about the rights of patients to be involved as equal partners in decisions that affect their treatment and care. Her ambition is for patients and the public across the UK to feel confident that they can access and understand the information in their health records and can make informed choices about how it’s used in their direct care and in research.

Debbie is involved in an advisory capacity with organisations and movements who rely on health data and recognise its importance in research to improve outcomes for patients, including useMYdata, Health Data Research UK, Independent Cancer Patient Voice, Cancer Research UK’s Population and Clinical Research committees. From Belfast, Debbie is also a member of Northern Ireland Cancer Research Consumer Forum and the Council of Northern Ireland Cancer Registry. She is also involved in clinical and population studies locally and internationally.

 

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Caroline Cake

Chief Executive, Health Data Research UK

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Caroline Cake is Chief Executive Officer of Health Data Research UK She provides strategic direction and leadership for the organisation’s delivery programmes.

Caroline is committed to supporting the HDR UK community in making the UK the most impactful place to do health data science. With more than 20 years of experience working in commercial organisations, Caroline joined HDR UK from 2020 Delivery. At 2020 Delivery she was a director advising health organisations, universities and central government departments on strategy, transformation, capability building, and delivery planning. Prior to joining 2020 Delivery, Caroline worked at McKinsey & Company and at ICI as a Chartered Engineer.

 

Professor Alastair Dennistony

Professor Alastair Denniston

Director of INSIGHT - the Health Data Research Hub for Eye Health and Consultant Ophthalmologist, University Hospitals Birmingham NHS Foundation Trust

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Professor Alastair Denniston is a consultant ophthalmologist (eye specialist) at University Hospitals Birmingham leading research into the use of health data research and artificial intelligence to improve patient care in the ‘real world’. He is Professor at the University of Birmingham, and part of the Biomedical Research Centre for Ophthalmology at Moorfields Eye Hospital/UCL.

 

Register

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